For
more information
on Addison's Disease, click here.
For a list of
resources available from
the Association,
click here.
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Obviously,
we exist because Addisons disease exists,
but the following
should be helpful in understanding how the Association works and what we
do:
Our
goals:
- To raise the awareness
of the Medical Profession, so that the disease is considered when difficult
cases present.
- To make the general public
aware of Addison's disease
- Supply up to date information
to people with Addison's disease
- Supply a caring network
to give support for people with Addison's disease.
Funding:
We are non-profit organisation funded by membership fees and donations.
We do not receive any government funding.
In 1998 we became
an Association and now have representatives in most States and Territories.
The Committee:
The current committee consists of President, Vice-President, Secretary,
Treasurer, Newsletter Editor, Webmaster, Medical Adviser and Promotions
officer. The occupants of these positions are volunteers and are elected
at the Annual General Meeting.
The current committee members are:
President: Noreen Secomb
Vice President: vacant
Secretary: Jim Sims
Treasurer: Suzanne Cannon
Editor: Kerry Wheeler
Webmaster: Peter Stewart
Promotions Officer: vacant
Medical Advisor: Associate Professor, David Torpy
Activity:
Following are some of our achievements and activities since 1995, when
the support group was first formed:
- Membership has
grown from 3 to more than 300, and contact has been made with a further
200 Addisonians.
- We put our members
in contact with other Addisonians, and exchange Newsletters with similar
overseas organisations.
- We communicate with Government departments, drug companies, specialists and various medical organisations
- We hold memberships
of several Self Help organisations around Australia, and maintain updated
information on web sites which are accessed by the Medical Profession.
- State and Territory
representatives organise meetings from time to time and arrange activities
which give the local Addisonians the opportunity to get to know others.
- Our telephone
"Help-line" service is used extensively by members, their
families and friends.
We maintain an
informative website, updated from time to time.
Newsletter:
We publish a bi-monthly newsletter in which Case Histories
and new information are featured. It includes a Q. and A. section where
members' questions are answered by a leading Endocrinologist and a Pharmacist
who have offered their services to the Association. We also report on the work the association has been doing to raise awareness and improve quality of life for Addisonians.
Selected newsletters are displayed on this site. (go
to Newsletters section)
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